Part 2. Immunity

Part 3. Therapy

Part 4. Resources

 

PATIENTS'

NATIONAL

 

· By Recovered Patients

 

CANCER

 

· Not Governmental

 

INSTITUTE

 

· Not For Profit

 Volunteer Support for Cancer Freshmen by Cancer Graduates

  

SITE INTRODUCTION - BEGINNING

PART 1 of 4

 

A SPECIAL WELCOME TO FELLOW "TERMINAL" PATIENTS. Some of us were given 6 months to live, or 2 months, or just sent home to die. As Mark Twain said, the news of our demise was greatly exaggerated. Watch for the end of STEP 1 in the Treatment Section / Patients Protocol, “(RE-) SELECTING A WINNING TEAM” where we share some of our "terminal" experiences – changing doctors, etc.

We all remember the feeling of panic when we first heard the diagnosis of cancer. Some of us received a second blow when we were told (incorrectly) how few months we had left to live. But gradually we learned that most people die with cancer, not from cancer and that common cancer cells are weaklings that may take 5 - 20 years just to grow large enough to be visible. And most surprising, that the body is exquisitely designed to destroy a normal amount of cancer cells all the time, as a natural condition. That's why most people don't have tumors. Eventually we learned about less-invasive international cancer treatments commonly lumped under "alternative therapy" in America.

Government experts now recognize that invasive conventional therapy can make things worse for certain patients, when they can't tolerate the treatments or when the cancer is not really life-threatening. For these patients they now recommend "watchful waiting," meaning NO treatment.

This expert advice to consider "watchful waiting" is actually a veiled warning for cancer patients about a controversial policy unique to America. This policy allows doctors to give invasive cancer treatments even when there is not a likelihood of benefit, and even when they may do more harm than good. One justification given for this policy is to keep patients from getting competitive treatment "from the hands of quacks and charlatans." This cruel, secret policy will be discussed later.

Thousands of us found success in the middle ground between no treatment, and rushing into unnecessarily invasive treatment. This middle ground is summarized later in THE PATIENTS' PROTOCOL - How we won our war on cancer. These steps can also help to prevent cancer or to keep it from coming back.

The PATIENT'S PROTOCOL is basically a list of the conventional and alternative treatments that have made tens-of-thousands of us well over the past 20 years.

How can we have a list of successful cancer treatments when the American cancer industry says they need much more money for many more years to find a cure for cancer? We believe they are using the bulk of our money to research and develop future products to patent and sell to future cancer patients. Since our own lives depended upon it, we have ignored commercial viability and concentrated on existing treatments for existing patients. A terminal diagnosis can really focus one's attention.

While successful, some of these existing treatments are demanding and inconvenient. We hope that someday they can be made easier. So we do not begrudge the government and the rest of the cancer establishment the funds they need. Also we know that our healthcare system is now based on profit, so we understand why they want to concentrate on those treatments that can be patented in order to bring the greatest profits. Meanwhile, we hope they will stop interfering with the idea of today's patients saving themselves with today's treatments.

With your help we plan to become a clearinghouse of non-commercial information for patients. To begin we will identify which conventional treatments and alternative treatments from around the world actually worked for us, and which did not.

Meanwhile we encourage you to learn as much as possible about your cancer. Be warned. It's hard to uncover the truth. The most prestigious and authoritative sources can give you one-sided or just plain ignorant information. One reason is that their viewpoint may be too provincial and restricted, ignoring international developments. Someone said NIH stands for Not Invented Here, instead of National Institute of Health.

Another problem is the fact that research results can be made to come out however the researcher wants, so you can't rely on any single source. Science Newsletter reported that over 30% of the authors of scientific papers had a secret financial interest in the results they reported. We must rely on the integrity of the researchers, which in the other 70% is usually very high.

Politics and profits are most likely to override good science when there is something to sell. Another clue to identifying  questionable research – it is often reported in the popular advertising media, such as TV health "news" or magazines, instead of dry research journals where they are held to a higher standard by knowledgeable peers.

The PATIENTS' NATIONAL CANCER INSTITUTE will strive to be as accurate as possible in this difficult climate. A key purpose of this site is to penetrate the powerful politics of cancer, to try to get you the best information available.

· Information on conventional therapy will usually come from the American government's National Cancer Institute (Occasionally doctors find them very wrong) plus medical doctors who are experienced in using conventional therapy to successfully treat cancer.

· Information on alternative therapy will usually come from established international cancer hospitals plus American and international medical doctors who are experienced in using alternative therapy to successfully treat cancer that we used to get well.

· Commentary will be by recovered cancer patients and their spouses who have first-hand knowledge of the topic,  unless otherwise noted.

 

The question often comes up, “ Who should I believe?’

One answer that seems to work pretty well is this.  Only believe sources who have FIRST-HAND KNOWLEDGE of which they speak.  Doctors who are already successful at curing patients that way, patients who have already recovered that way, etc.

 

Steel yourself against believing any authority, competing doctors, websites and con-men, authors and book-sellers, even well-meaning friends who do not have that FIRST-HAND KNOWLEDGE of what they advocate or condemn.  Competing doctors are a real problem because they know how to make their living by convincing patients (or as critics say, by scaring them) to buy their services.  (Studies show that doctors almost always recommend their own specialty.)  Websites, con-men and authors may be even more dangerous because they are even more expert at making you believe.  One friend died because her husband was so convinced by a TV con-man that his book and products would cure her cancer.  The con-man lied about having that first-hand knowledge, so you may have to insist upon talking with cured patients.  (See our section on CANCER GRADUATES for names and cases.)

 

Handling family and friends can be very difficult.  In one case, her family flew in specifically to stop her from using the very methods now described on our website.  Fortunately she was able to resist them because her widely metastasized cancer lumps were already going away.

 

 

 

Eventually we will share Frequently Asked Questions and answers with you, but that will come later, as volunteer resources and donations permit.

Meanwhile we will share the experience of the tens-of-thousands of American cancer patients who chose to combine the best of conventional therapy with the best of alternative therapy – too often forced to go abroad for freedom of treatment.

And right now, we want to help you to get well and stay well, whatever therapy you chose.

 

 

 

“It may be too early for cancer freshmen to appreciate what has happened to many of us cancer graduates. We became grateful to this cancer adventure for leading us  ( actually, pushing us ) through a doorway to a better lifestyle, much happier for us and our loved ones. “

 

 

Please Click "Next Page" below to continue the introduction with Part 2, our recovered patients' view of cancer and the immune system.

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(Last page update August 14, 2009 - www.PatientsNCI.org)